#30DaysofBrave- Day 23- Jen

Our little fighter spent 68 days in the NICU during not one but two stays and three surgeries. 

Claire was full term but has cystic fibrosis which caused a bowel blockage at birth. 

She lost over 18 inches of intestines and had an ostomy for a period of time in the NICU. The NICU experience has changed our lives in so many ways.

I learned how strong our little girl is and how to advocate when the last thing I was feeling was strong.  Everyone’s NICU journey is different but we all can come together to support one another.

You can read more about Jens journey on her blog at www.thecandcdiaries.com

Pam Frasco