She Will Keep Fighting Hard, And We Will Be There Every Step Of The Way

The aching question in my head was why? Why had this happened? It had to be something my wife or I had failed at, certainly. Had we let her have too much screen time?  Had we not interacted with her enough after those long days in the office when we had been worn down and just wanted to Netflix and chill? Had we not read enough books? What was it that we had done wrong? What had we done that was not enough? 

I knew it had to be us, because my daughter had done everything we could’ve asked of her.

Read More
Jen MaherComment
Because no one wants to win in the battle of pain...

When you are dealing with such heavy issues as premature birth, newborn medical conditions, infant loss and long-term healthcare needs for children… no matter how far removed from your NICU journey, or how adjusted you are in the situation, pain finds its way to the top.

It’s the pain that we use to empathize. Its the pain that we use to push us to make change. 

But it can also be the pain that stands in our own way of remembering the most important thing…

Everyone’s journey is important.

Read More
Jen Maher
Happy NICU Nurses week to each of you. Thank you.

Thank you for...

Taking longer with me, when I needed you to, despite the giant list of to-do’s you had swarming around you. 

Answering my questions to the absolute best of your ability. Usually answering the same ones more than once. 

Reminding me I was “mom”.

Being brave, so I could be too.

Using gentleness in everything, always.

Knowing when I needed a break, and demanding that I take one.

Showing up.

Read More
Jen Maher
Be Kind

It is free to be kind to others. Smile and say hi to someone. Listen to someone. Do other random acts to pay it forward. These random acts can outweigh the negativity going on in our world. These acts can help someone who is lost or broken without you knowing because it was just the right thing to do. Who knows, if enough kindness happens, maybe the scary stuff will be muted or go away altogether. Lets give these amazing fighters a positive and kind world to grow up in. 


Read More
Jen MaherComment
NICU Truths and Lies

I’m ready (I think). My sons, Geno and Ronan, are now 2 and half years old.  In some ways it seems like forever ago, and in others, it all began yesterday.  For quite some time, the trauma of our NICU journey had left me speechless. But if my tiny mighty fighters could brave 65 days in the NICU, I can certainly find the courage to put some of that into words. So here it goes. These are the things I needed hear. Or things I heard, but didn’t believe. These are the truths and lies of NICU motherhood:

Read More
Jen Maher Comment
Nurses Week

If you are blessed to be a nurse, please know that what you do changes lives.  What you do shines a light in the darkness for so many. On days you feel like giving up- someone needs you- and might just be speechless with gratitude.  

Read More
Jen Maher Comment
Just like that, I have a one-year-old...

I honestly feel this has been the fastest year of my life, but why should it have

gone slow? My pregnancy was fast forwarded to the end three months early, so why

should the rest of the first year of my daughter’s life have been any different? Some

say the first birthday party is meant for the parents because they have kept their

child alive for their first year of life, but if you have a preemie, that statement

couldn’t be further from the truth.

Read More
Jen MaherComment
Side by side

These memories spark a proud mama bear in me; proud of her for how far she’s come, proud of our family for what we have gotten through, together.  Some people might be scared to have a random picture pop up of their baby when she was only 1 lb 5 oz, three chest tubes, much smaller than my husband’s hands that are cupped around her. For us, and even for Holly, who is 2 and a half- we only see our child.  

Read More
Jen MaherComment
#30DaysofHope Day 29- Rochlle featuring "A letter to mom in room 18..."

Yes- mama. You’re a mother now. In the disorienting cloud of dust left behind by the explosion that just went off around you, it was impossible to congratulate yourself. You are “mom”. Despite the nature of this place- a place where there is no privacy, a place where you must have permission and assistance to hold your baby, a place where mothering is hard- know that he is yours. You know best, even when you feel you know nothing. No one can do it better than you.

Read More
Jen MaherComment
Life after the NICU...

Recently, my husband and I went to the NICU family support group to tell them our story and to show them how well Poppy is doing. During our NICU stay, those were our favorite meetings. Seeing a NICU graduate thriving post-NICU gave us hope and assured us that there is a light at the end of the tunnel. After we told them Poppy’s story, the first questions the parents asked had to do with our NICU stay and how we made it through.



Read More
Jen Maher Comment
NICU Insensitivity

Now you have a baby that was born too soon. No one can understand what you are going through other than other NICU parents. This is not for the weak. You become more medically versed than you ever expected in your life and you literally watch the tiniest human you have ever seen fight for their life. You assume your family and friends will understand what you are going through automatically and that they will know the type of support that you need, but that really is not the case. Instead things can be said or done that hurt you because they do not realize what things you might be sensitive to now that you are a NICU mommy or daddy. I call this the NICU Insensitivity.

Read More
Jen Maher
NICU after Infertility...

Starting a family. Pregnancy loss. Infertility. These are journeys that no one can prepare you for. Journeys that until you’ve lived them, you will never truly understand. Journeys that will give you your highest highs and your lowest lows. Journeys that most people travel alone. We did. But the more we reflect on that journey, we have come to realize that it needs to be shared because you see, it was the greatest journey of our lives. If our story can help just one person find hope, or a shoulder to lean on, or just someone to relate to, then it’s worth sharing.

Read More
Jen MaherComment